Quote reblogged from shes more than alright with 497 notes
“An Insider’s Guide on How to be Sick
Never say the words ‘this is not my life’
This pain that wakes you screaming in the muzzle of the night
That woke your lover, chased into another room
into another life
This fevered fainting
This trembling chest
This panic like a cave of bats
This nurse drawing blood wearing doubled gloves
This insurance doesn’t cover that
This hurried paycheck of doctor after doctor after doctor
This stethoscope that never hears your heart
This hospital bed
This florescent dark
This save your prescription with side effects worse than the disease
This please let me have one month where I read more poems than warning labels
This not knowing what the test will say
This pray pray pray
This airplane’s medical emergency landingShame when you can’t walk
Shame when you’re home alone sobbing on another friday night
Say ‘This is my life
This is my precious life
This is how badly I want to live’
Say Sometimes you have to keep pulling yourself up by the whip
Take punch after punch to the face forward
To the head up
And still uncurl the fist of your grief like a warm blanket on the cool earth of your faith
Say every waiting room is the clime where you will finally take shape to fit into the keyhole of your own gritty heart
To open mercy
To open your siren throatSay every fever is a love note to remind you that there better things to be than cool
Fuck cool
Fuck every pair of skinny jeans
From the month your muscles atrophied to a size two
Say fuck you to anyone who asks you if you eat enough
Say how do you not know that is so fucking rude
Remember you never have an obligation to fight the hurricane in your chest
Especially on a day when another healthy person suggests ‘you would feel so much better if you would just focus your breath into a Buddha beam of light
Like that blind is going to miraculously dissolve the knife that’s been churning in your kidneys for the last six fucking months
Say Sunshine, please go back to your job at the aroma therapy aisle at Whole Foods and leave me alone
I know how to help my body
God does not expect me to use my inside voice
God knows how goddamn hard I am working to become a smooth stone
So I can skip on my back across this red red sea
So I can trust deep in my screaming bonesEverything is a lesson
Lesson #1 through infinity
You will never have a greater opportunity to learn to love your enemy than when your enemy is your own red blood
Truce is a word made of velvet
Wear it everywhere you go
Bandage the window where you screamed at the mountain for forgetting your footsteps
Trust that mountain is climbing you
Especially on the days you inevitably want to avalanche everyone who loves you
When you can’t walk from the bed to the bathroom without clenching at the walls
When you can’t imagine you can fall to pieces in another’s sturdy arms and still be seen as whole
Remember, the universe only became the universe when it shattered into dust
And that shattering is the one thing you can always trust enough to tell you
the truth is so quiet
you may never have heard it without a stethoscope pressed to your chest
That is to say in the house of your compassion its possible illness will be the landline
And its how you will begin to hear the world clear as a pin dropping
The downpour of its eyes
The long quarter of its broken throatOn my most broken days
when my faith is a willow and the pain has nothing but an ax to give
The only thing I want more than to die
is to live
Is to live to hear my neighbor play his music obnoxiously loud
To get cut off in traffic fifty more times
To get broken up with while standing in line at the DMV
To have another doctor drive another needle into my skin for the hundredth time
So I can say, for the hundredth time, that needle is the needle on a record player, Doctor, everything and I mean everything can learn how to sing””
Source: ohandreagibson
My skin isn’t doing terribly bad right now, but I need my GI to see it ASAP and I would like to find an HS specialist who would consider medications other than all of the antibiotics forever. Unfortunately none of the specialists take my insurance. And my GI is booked for two months.
Link reblogged from Daily interstitial cystitis-related posts with 462 notes
Kissing Bovines: Things people wouldn't think about involving Chronic Illness →
Yes, there’s the pain, immune problems, fatigue, sleep, throwing up, etc. but here is a list of things people probably overlook that we have to deal with.
- If we gain weight, it’s not easy to take it off. We can’t just work out tons like you can, and we can’t necessarily pick what…
Source: tacotasha
Post with 7 notes
You know that thing with Crohn’s where you eat and you IMMEDIATELY have to go to the bathroom? Or sometimes you have to disappear before the meal is over?
Yeah, that’s happening again. I’m 99% sure it’s because of the antibiotics I’m taking. I’m not really a fan of this.
Post with 1 note
Half the pill seemed to be just enough. I’m having a few momentary sharp pains but the general discomfort is gone.
The weekend went well, health wise. I took my Cimzia yesterday and exhaustion is setting in from that AND from doing so much the past few days.
Everything hurts and I just want to go back to sleep.
I have no idea what just happened. My hip joints and pelvis were cramping so badly I thought I was going to throw up. After walking around for a minute it stopped.
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